Data Sharing & Dissemination

Charter: This working group investigates best practices in data sharing and dissemination for Open Biomedical Data and provides resources to the GCs to help guide their data sharing and dissemination plans. Subjects discussed include definitions of Open Data in the context of biomedical data, best practices regarding the consent process for open biomedical data, tools to promote ethical dissemination of biomedical data, and ethical guidelines and codes of conduct. The working group aims to capture need assessments of all 4 GCs, support plans for data dissemination for the Open House and the data release, and publish best practice guidelines for sharing and disseminating open biomedical data for AI.

Leads: Yael Bensoussan and Lucila Ohno-Machado