Data Subject
The term data subject refers to an individual whose data are used in data science research using de-identified, public datasets.
This repository is under review for potential modification in compliance with Administration directives.
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Dr. Aaron Goldenberg: Unanswered ELSI Questions in the Development of Biomedical Repositories: Privacy, Equity, and Stewardship
Dr. Goldenberg discussed the evolving ethical, legal, and social concerns (ELSI) associated with biorepositories and biobanking.
Dr. Berk Ustun: Towards Personalization without Harm
Dr. Ustun discussed how machine learning models, personalized with sensitive features like sex, age group, and HIV status, can perform better for populations but worse for specific groups, potentially causing harm.
New Notice of Funding Opportunity – NIH Common Fund Data Ecosystem
Letter of Intent by April 28 and May 28, 2023; Submission by May 30 and June 28, 2023 Dear colleagues, The NIH Common Fund issued two new notice of funding opportunity announcements from the Common Fund Data Ecosystem (CFDE): OTA-23-004 and RFA-RM-23-002. The purpose of…