Dr. Tim Mackey: Leveraging Blockchain Technology to Enable Indigenous Data Sovereignty of Genomic Data

Dr. Mackey discussed a project funded by the Robert Wood Johnson Foundation in partnership with The Native Biodata Consortium to develop a blockchain-based governance system for managing Indigenous genomic data. […]

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Dr. Xiaoqian Jiang: Sensitive Data Detection with High-Throughput Machine Learning Models in Electronic Health Records

Dr. Jiang explored how a groundbreaking discovery was utilized to generate 30 metadata-based features through machine learning for the automatic detection of PHI fields in structured Electronic Health Record (EHR) data. […]

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Dr. Bradley Malin: One Size Does Not Fit All: How to Build Respectful Cohorts for Biomedical Data Science

Dr. Malin drew upon examples from large-scale data-driven projects like the EMR and bio-repository at Vanderbilt University Medical Center, the eMERGE consortium of the NIH, and the All of Us Research Program, aiming to create a comprehensive database of EMRs, genome sequences, and mHealth records from one million Americans. […]

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Dr. Debra Mathews: Using Population Descriptors in Genetics and Genomics Research: A New Framework for an Evolving Field — Lessons from a NASEM Consensus Study for AI-READI

Dr Mathews provided an overview of the recent NASEM consensus study report that focused on the use of race and ethnicity and other population descriptors in genomics research, including the recommendations made by the committee. […]

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Joseph Yracheta: The Dissonance between Scientific Altruism & Capitalist Extraction for & from the Amerindigenous

American Indians experience elevated rates of health conditions like diabetes, chronic kidney disease, and cardiovascular disease, as well as greater exposure to environmental hazards. […]

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Dr. Aaron Goldenberg: Unanswered ELSI Questions in the Development of Biomedical Repositories: Privacy, Equity, and Stewardship

Dr. Goldenberg discussed the evolving ethical, legal, and social concerns (ELSI) associated with biorepositories and biobanking. […]

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