Dr Mathews provided an overview of the recent NASEM consensus study report that focused on the use of race and ethnicity and other population descriptors in genomics research, including the recommendations made by the committee. […]
Category: B2AI Discussion Forum on Emerging ELSI Issues
Joseph Yracheta: The Dissonance between Scientific Altruism & Capitalist Extraction for & from the Amerindigenous
American Indians experience elevated rates of health conditions like diabetes, chronic kidney disease, and cardiovascular disease, as well as greater exposure to environmental hazards. […]
Dr. Aaron Goldenberg: Unanswered ELSI Questions in the Development of Biomedical Repositories: Privacy, Equity, and Stewardship
Dr. Goldenberg discussed the evolving ethical, legal, and social concerns (ELSI) associated with biorepositories and biobanking. […]
Dr. Berk Ustun: Towards Personalization without Harm
Dr. Ustun discussed how machine learning models, personalized with sensitive features like sex, age group, and HIV status, can perform better for populations but worse for specific groups, potentially causing harm. […]
Read More… from Dr. Berk Ustun: Towards Personalization without Harm