Category: B2AI Discussion Forum on Emerging ELSI Issues

Dr. Malin drew upon examples from large-scale data-driven projects like the EMR and bio-repository at Vanderbilt University Medical Center, the eMERGE consortium of the NIH, and the All of Us Research Program, aiming to create a comprehensive database of EMRs, genome sequences, and mHealth records from one million Americans. […]

Read More… from Dr. Bradley Malin: One Size Does Not Fit All: How to Build Respectful Cohorts for Biomedical Data Science

Dr Mathews provided an overview of the recent NASEM consensus study report that focused on the use of race and ethnicity and other population descriptors in genomics research, including the recommendations made by the committee. […]

Read More… from Dr. Debra Mathews: Using Population Descriptors in Genetics and Genomics Research: A New Framework for an Evolving Field — Lessons from a NASEM Consensus Study for AI-READI

American Indians experience elevated rates of health conditions like diabetes, chronic kidney disease, and cardiovascular disease, as well as greater exposure to environmental hazards. […]

Read More… from Joseph Yracheta: The Dissonance between Scientific Altruism & Capitalist Extraction for & from the Amerindigenous

Dr. Goldenberg discussed the evolving ethical, legal, and social concerns (ELSI) associated with biorepositories and biobanking. […]

Read More… from Dr. Aaron Goldenberg: Unanswered ELSI Questions in the Development of Biomedical Repositories: Privacy, Equity, and Stewardship

Dr. Ustun discussed how machine learning models, personalized with sensitive features like sex, age group, and HIV status, can perform better for populations but worse for specific groups, potentially causing harm. […]

Read More… from Dr. Berk Ustun: Towards Personalization without Harm