Category Term of the Month

Indigenous data sovereignty (IDS) is defined as the right of an Indigenous nation to govern the collection, ownership, and application of data generated by its members.

Term of the Month Precision Medicine James Tabery December 8, 2023 James Tabery | December 8, 2023 Every month, ETAI will be sharing a term or concept of the month that is related to ethical issues in biomedical research. The term…

This term reflects the paper's emphasis on using high-throughput machine learning models to precisely detect sensitive data, specifically Protected Health Information (PHI), in electronic health records.

In today's digital age, algorithmic decision-making systems play a crucial role in fields like credit scoring and medical diagnoses. While they are often praised for being 'objective,' these systems can exhibit biases, mostly stemming from the data they rely on.

“Dignitary privacy is based on a belief that privacy is intrinsically valuable, whereas resource privacy is based on a belief that privacy is simply a tool that has instrumental value.”

Hughes, RL David.

In a recent article in the Stanford Social Innovation Review, a group of authors “define a social license as the process of building trust and legitimacy from ongoing (i.e., constantly renewed) community or stakeholder engagement and acceptance of how data is being accessed and reused.”

The term data subject refers to an individual whose data are used in data science research using de-identified, public datasets.